FSR-SCOUT Home Page

Help us find out what outcomes for pulmonary sarcoidosis are the most important to measure.

The  FSR SCOUT study needs your help to agree a set of the most important outcomes, the core outcomes, that should be measured in all future studies of treatments for pulmonary sarcoidosis.

You can watch a short video about core outcome sets below:

Who can take part?

We need the following people to take part:

  • People who have pulmonary sarcoidosis
  • Health professionals (including primary care, secondary care and allied health professionals)
  • Researchers working in the field of pulmonary sarcoidosis research
  • Industry representatives

What do I have to do?

Taking part involves completing two online surveys.  One now and another in a few weeks time.
You can read about these surveys, what is involved and how long they will take in the participant information sheet. Please read this, by clicking the link below, before you decide to take part or not. The participant information sheet will open in a new window.

FSR-SCOUT Participant Information

COVID-19 update

Ideally the final, optional, stage of this project will be a face to face consensus meeting to discuss the results of the Delphi survey. However, in light of COVID-19 we will also be exploring alternative online methods. You can express your interest in attending a meeting at the end of the second survey and we will send more information about how the meeting will take place closer to the time. 

Do I have to take part?

No, but if you do take part we hope that you will take part in both of the surveys. This helps us to ensure that the results of this study are not affected because those who only take part in the first survey have a different opinion.

I have a question, who can I contact?

If you have any questions about the study please contact:

Nicola Harman

scout@liv.ac.uk

 

If you are ready to take part click on "register" below.

To ensure that the survey displays correctly please complete it on a PC, laptop or large tablet device. 

If you have already registered, please click here

If you have forgotten your login details please click here

All DelphiManager data is stored on a secure server in the University of Liverpool data centre. For more information please contact delphimg@liverpool.ac.uk