Thank you for agreeing to take part in the survey. The aim is to identify the most important outcomes that should be reported by reserach studies of head, neck and respiratory disease in MPS II (a 'core outcome set'). This survey is for outcomes relating to patients aged 12-25 years old.
There are two rounds to the survey. We will contact you when round 2 is ready to complete.
Please set aside 30 minutes to complete this survey.
More information
Please make sure you have read the revelant 'participant information sheet' before completing the survey.
Your consent to take part
By completing and registering your details, you confirm the following:
If you agree with these statements please register to take part in the study.
If you have already registered, please click here
If you have forgotten your login details please click here
All DelphiManager data is stored on a secure server in the University of Liverpool data centre. For more information please contact delphimg@liverpool.ac.uk